Are you struggling with chronic Lyme disease? (Oops, I forgot, there is no such thing as chronic Lyme disease – just ask Dr. Alan Steere) Well, instead of the mass media outlets ignoring chronic Lyme disease, they are now requesting stories.This is so important if we are to be heard and gain support. Even if you are bedridden, you can still write your story. It doesn’t have to be perfectly written – it just NEEDS to be told. Send it to http://katiecouric.com/lets-talk/do-you-have-a-story-about-lyme-disease/ Spread the word and let’s see if we can make a new story about how many there are of us willing to share such a personal and distressing part of our lives. Our stories need to be told. And they need to be heard. Protests need able-bodied people to march and hold signs. But this is something any one of us can do – even if it needs to be typed by our caregiver. Compassion is alive and well in America, but the numbers of people suffering with chronic Lyme disease (or some form of Borrelia) is staggering – some say in the millions. If 4 million Lyme tests are being done each year, and even with the false negatives the CDC admits that there are over 300,000 cases reported each year (and we all know that many cases are not reported to the CDC), and even amongst those treated for Lyme disease there are many who go on to become chronic due to improper treatment. Charity and understanding is desperately needed. Financial assistance will remain unavailable unless we join together to make our case. National Center for Health Statistics lists 114 deaths listed as cause of death from 1999 – 2003. Keep that in mind when you read: http://owndoc.com/lyme/dying-of-lyme-disease-case-fatality-rate-nearly-100/ When you feel like you are dying (from your Borrelia+ symptoms) – you just may be. So now is our chance to be heard!
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