Share Your Struggle With Chronic Lyme Disease – Katie Couric Wants You!

Share Your Struggle With Chronic Lyme Disease - Katie Couric Wants You!

Are you struggling with chronic Lyme disease? (Oops, I forgot, there is no such thing as chronic Lyme disease – just ask Dr. Alan Steere) Well, instead of the mass media outlets ignoring chronic Lyme disease, they are now requesting stories.This is so important if we are to be heard and gain support.  Even if you are bedridden, you can still write your story.  It doesn’t have to be perfectly written – it just NEEDS to be told. Send it to http://katiecouric.com/lets-talk/do-you-have-a-story-about-lyme-disease/  Spread the word and let’s see if we can make a new story about how many there are of us willing to share such a personal and distressing part of our lives. Our stories need to be told. And they need to be heard.  Protests need able-bodied people to march and hold signs.  But this is something any one of us can do – even if it needs to be typed by our caregiver.  Compassion is alive and well in America, but the numbers of people suffering with chronic Lyme disease (or some form of Borrelia) is staggering – some say in the millions. If 4 million Lyme tests are being done each year, and even with the false negatives the CDC admits that there are over 300,000 cases reported each year (and we all know that many cases are not reported to the CDC), and even amongst those treated for Lyme disease there are many who go on to become chronic due to improper treatment. Charity and understanding is desperately needed.  Financial assistance will remain unavailable unless we join together to make our case.  National Center for Health Statistics lists 114 deaths listed as cause of death from 1999 – 2003. Keep that in mind when you read:  http://owndoc.com/lyme/dying-of-lyme-disease-case-fatality-rate-nearly-100/ When you feel like you are dying (from your Borrelia+ symptoms) – you just may be.  So now is our chance to be heard!

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4 Responses to Share Your Struggle With Chronic Lyme Disease – Katie Couric Wants You!

  1. Doug says:

    Hey Jenna, it’s been a long time, few years since we last spoke….Still to this day am fighting Lyme and it’s company…not a pretty road as you know…..regardless even though I already wrote to and in Katie Couric’s site when her show hit the news…..I’d like to write again in the link you provided……but it does not work right…..it does not bring you to the “Lyme” area…..perhaps you could look into that? Thanks

  2. Vicky Hayse says:

    I am happy to share my Lyme story. . .but I was wondering just how much time we have to do this. At the moment I am not at my home. My father passed away on August 29th. His celebration service was September 13th. Since then my 3 brothers and my sister and I have been clearing his home in Indiana and preparing it to sell. The task is finally completed. My sister lives close by and will oversee the remaining process. I am heading back to Florida on Friday. I am exhausted to say the least. Yet, I am wanting to participate in this endeavor for the Lyme community. . .if I can have a few days to regenerate before sitting down to write. I am blessed in that I have enjoyed 20 months of wellness with no relapses of my Lyme symptoms. (Relapse after relapse has been my story for the last 15 years.) This is the longest period of wellness I have ever had. God blessed me with good health…just a few short months before my mother died in August of 2013. Thus, I was able to care for my 88 year old father for this past year. What a blessing!
    Thank you for letting me know about this opportunity to share our Lyme stories. Like I said, I am very happy to do so, if I can have just a few days to regenerate once I get home.
    Resting in the Faithfulness of God,
    Vicky

    • Jenna Smith says:

      Take your time – I am so sorry about your father!! I can only imagine the amount of work but thankfully it didn’t fall on you alone! I look forward to receiving it when you complete it.

      Blessings,

      Jenna

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