New Legislation Regarding Chronic Lyme Disease

Thankfully there is now some hopeful news we can think about while bedridden with pain, fatigue and neurological ailments. There are healthy volunteers working to help us, and working to help our nation as we face this growing epidemic of tick-born diseases.

Even some of our legislators are standing up against the gross injustices that continue under the authority of IDSA, and we can only hope this new legislation won’t be stonewalled as in previous attempts.

Recently the following press release was issued from the Lyme Disease Association.

The all volunteer national Lyme Disease Association (LDA) is pleased to announce the introduction of a bill and proposed legislative actions that focus attention on the growing concerns surrounding Lyme and tick borne diseases.

Congressman Christopher Smith (R-NJ) introduced HR-2557, the Lyme and Tick-Borne Disease Prevention, Education, and Research Act of 2011, on Friday, July 15, 2011, along with cosponsors Frank Wolf (VA), Tim Holden (PA), and Chris Gibson (NY).

Congressman Smith’s bill, HR-2557, requires the Secretary of Health and Human Services to establish a Tick-Borne Diseases Advisory Committee to address a variety of important issues.
The Committee will be charged with advising Federal agencies on priorities related to Lyme and tick-borne disease issues and will be composed of scientists, representatives from government agencies, health care providers and patient representatives. The Committee is charged with ensuring that a broad spectrum of scientific and stake-holder viewpoints are represented in public health policy decisions and that information disseminated to the public and physicians is balanced.

Congressman Smith, Chairman of the Congressional Lyme Disease Caucus for the past seven years, has worked diligently to foster greater knowledge about tick-borne diseases over the years. Amongst his many Lyme-related endeavors, he hosted a Lyme and Tick-Borne Diseases Forum last summer in Wall Township, NJ, for health officials, medical professionals and the public, with over 300 people in attendance. Pat Smith of the LDA was one of the guest speakers.

Senator Richard Blumenthal (D-CT) has plans to highlight legislation to combat the spread of Lyme disease. He will meet with volunteer patient advocates from the Connecticut based Lyme disease group, Time for Lyme (TFL), an affiliate of the Lyme Disease Association, at the Connecticut Agricultural Experiment Station in New Haven on Monday, July 18, 2011.

Senator Blumenthal, who served an unprecedented five terms as Attorney General in Connecticut, is known for his efforts to make real and lasting difference in the lives of the people. He has been a long-time public defender of Lyme disease patients rights.

The Lyme Disease Association (LDA), an organization that seeks to eliminate tick-borne diseases by funding research, educating the public, and providing scientific conferences for doctors, is grateful to Congressman Smith, Senator Blumenthal, the bill cosponsors and staff for their enduring commitment to improve the health of countless patients suffering from Lyme and tick-borne diseases.

For more information please visit the LDA website: http://www.LymeDiseaseAssociation.org/ The LDA is currently in the process of updating our website and materials to help provide the Lyme community information/materials needed so you can contact your legislators.

We will be sending out another email when our updates are completed. Thank you for your patience.

The LDA is an all-volunteer national nonprofit, 501 (c) (3), dedicated to Lyme disease education, prevention, raising monies for research, and patient support. It’s a part of the 2010 Combined Federal Campaign and an Environmental Protection Agency PESP Partner and offers LymeAid 4 Kids program for children without insurance coverage. LDA is associated with 43 Lyme organizations nationwide, working together to make a difference for Lyme patients.

Read this press release on the web: http://tinyurl.com/3nfkbyw

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