I am sharing (with permission) this request I recently received. Hopefully we can help our cause from another angle…objective research. The request came to me as follows:
My name is Victor Fontaine and I am a candidate for the Masters student in Global Innovation Management at North Carolina State University.
I am currently working on an academic project with two other students over the course of the semester, where my goal is to better understand chronic Lyme Disease, Fibromyalgia and its treatment, specifically where diagnosis and treatment fail.
I am very interested in learning about this from a patient’s perspective, if anyone would be willing to speak with me. This is for an MBA level class, so the goal for this class is to understand the customer needs and wants, unbiased. This means that we would not try to sell you anything, and that you will remain 100% anonymous should you choose to help us. We need to hear from roughly 20 people, so if you or someone you know would be willing to talk to us, please let me know.
If you have any questions before committing please don’t hesitate to ask.
Victor Fontaine <firstname.lastname@example.org>
My interview is next week – I encourage anyone who has the energy to participate so this young man can put together a compelling research paper!