Help for Chronic Lyme Disease Victims in Connecticut

The hostile discrimination that has been felt across the country by people with chronic Lyme disease just may be starting to turn.  For so long the medical establishment -following the strict guidelines of IDSA (Infectious Disease Society of America) have turned away the hundreds of thousands of…

The hostile discrimination that has been felt across the country by people with chronic Lyme disease just may be starting to turn. 

For so long the medical establishment -following the strict guidelines of IDSA (Infectious Disease Society of America) have turned away the hundreds of thousands of people all across America.

Why?

Because Lyme disease is easily cured with 3 weeks of Doxycycline (so says the IDSA) and if that doesn’t cure our symptoms than we are:

hypochondriacs

looking for attention

lying

sick with Fibromyalgia (no known cause or cure)

sick with Chronic

Fatigue Syndrome (no known cause or cure)

just plain crazy

Heaven forbid that a doctor could be wrong!

Well, it appears that most of the nightmare is over for those who suffer with chronic Lyme disease thanks to Connecticut State Representative Kim Fawcett (pictured) who sponsored the bill and every other State Representative on the Health Committee – with the intense pressure and momentum over the IDSA ruling, the release of

that patients should be advised of treatment choices but that the patient retains the right to choose and insurance must pay.

If our constituents were not so disabled, we could effect some real changes based on laws that have already been passed.  But we can barely make it to hearings and some

cannot even do that.  A rally would be missing most of the discriminated who are bedridden or tortured by light and sound.

Meanwhile, it is my hope that a brave and principled attorney would begin proceedings for a class-action law suit against the unholy triad of IDSA, insurance companies and law makers.

But how much money can make up for the years stolen from young children?  How much money can make up for all the productive years and the trauma of bankruptcy and home foreclosure and

misdiagnosed surgeries?  The lost years of excruciating pain…who can make up for that?

For more information read

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One Response to Help for Chronic Lyme Disease Victims in Connecticut

  1. Jenna,
    Are you aware of the Danbury Hospital Lyme Registry? See: http://www.danburyhospital.org/en/Research-and-Academics/Lyme-Disease-Registry/About-Us.aspx

    Personally, I support the effort and have referred over two dozen chronic Lyme patients, not for treatment, but for research. They are looking at DNA components as well as treatment modalities that have been successful.

    I am also aware that some folks see this research as evil or likely to be misinterpreted. Clearly I’m not one of them.

    Russell Cornelius
    President, Housatonic Valley Rotary Club

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