Hi, my name is Finette, and I am not only a Lyme Patient but the parent of one. I am also a 20 year veteran in this battle as well as a trained and experienced patient educator and advocate for Lyme and tick borne illnesses.
Hi, my name is Finette, and I am not only a
Lyme Patient but the parent of one. I am also a 20 year veteran in this battle as well as a trained and experienced patient educator and advocate for Lyme and tick borne illnesses.
If you do not have the serious symptoms that require IVIG ( such as neuropathy as proven by biopsy and emg), immune system deficiency as proven by a good workup by immunologist and several sophisticated blood tests or other such condition to undertake this regimen is VERY dangerous and foolhardy.
This isn’t the
cure-all some think it is. It is a very specific treatment meant to target very specific problems. If you don’t have those problems taking IVIG will not do a thing for your Lyme.
Also even IF you have these problems and the IVIG helps them; you may still be left with all of your other Lyme symptoms.
This is a blood product and must be respected as such and all the care taken. FYI MMN is Multifocal Motor Neuropathy– often confused with ALS, etc it is a demyelinating peripheral neuropathy.it is
most common in middle aged MEN. many things ( including other autoimmine illnesses and even some Lyme symptoms) can mimic and be misdiagnosed as this. I have seen MANY Lyme patients told they have this–and turns out they do NOT anti-GM1 antibodies in 50-80% cases and EMG studies can show myelination issues so without EMG’s and antibody tests a diagnosis of this may be negligent this site