It is always a great pleasure to pass on hope. Those of us suffering for years begin to forget the look and feel of hope and are easily lost in the fog of despair that accompanies the pain – both physical and emotional, and the fatigue that confounds our bodies certainly must affect the energy required to hold on to hope with the tragic debate over the very existence of our disease.
If we had cancer we would be surrounded by love and support, but mention Lyme disease and watch your friends fade away with silent and/or verbal questions of our sanity. How could anyone imagine we want to live like this?
So, the good news – voices within IDSA are coming out of the closet. A founding member no less, Dr. Burton Waisbren (of Milwaukee, Wisconsin; http://www.waisbrenclinic.com) has bravely written a book on the evidence of chronic Lyme disease which includes 51 – yes, that is fifty-one, consecutive case reports between 2007 and 2011. Granted, the book is only available in ebook form – I downloaded it in less than one minute on my Kindle for less than $4!
Dr. Waisbren began serious inquiry into chronic Lyme in the late eighties, and is a rare breed of doctor for the Lyme weary patient – he is open minded. He believes in what he calls “investigative internal medicine” and has practiced and taught that concept for more than fifty-five years. He also advocates that “the absence of proof does not equal the proof of absence”. This is music to the ears of hundreds, if not thousands of people who have spent fortunes trying to find out what is wrong with them after every possible test reveals no evidence of anything wrong.
No, we aren’t going crazy, well…unless the Lyme takes over our brain!
ILADS (International Lyme and Associated Diseases Society) has presented a very informative critique by Dr. Steven Phillips on IDSA’s guidelines for any who are interested in understanding the ridiculous nature of the medical debate about chronic Lyme. Download the pdf. document at http://www.ilads.org/lyme_disease/media/pdf/IDSA_stevephillips.pdf.
To conclude, Dr. Waisbren states emphatically in his book that he believes there is an epidemic of chronic Lyme in our country – based on his experience – which is vast. Visit the doctors website to read a number of excellent essays regarding treatment and diagnosis as well as the medical debate at http://www.waisbrenclinic.com/index.html.