Chronic Fatigue Syndrome – The Phantom Illness

That's like saying “we don't know what to call it (often referred to as Post Lyme Disease, Fibromyalgia, Sick Building Syndrome, Gulf War Syndrome, Multiple Chemical Sensitivity among others), we have a poor understanding of what the disease is and we're uncertain about its cause(s)”.

That’s like saying “we don’t know what to call it (often referred to as Post Lyme Disease, Fibromyalgia, Sick Building Syndrome, Gulf War Syndrome, Multiple Chemical Sensitivity among others), we have a poor

understanding of what the disease is and we’re uncertain about its cause(s)”.

So if you are diagnosed with CFS it merely means you have the symptoms associated with CFS, such as chronic mental and physical exhaustion, myalgia, and cognitive difficulties to name a few. Being diagnosed with CFS tells us nothing of why we are experiencing those symptoms which for most of us means adding “frustration” to the list of symptoms. Its no wonder CFS is often referred to as the “Phantom

Illness”.

CFS is largely an exclusionary diagnosis and your cause of CFS may be different from mine, therefore your treatment(s) would have to be different from mine. So lets for a minute forget all the names and take the prevailing symptoms (chronic mental and physical exhaustion, muscle weakness, sleep disturbances) and simply refer to them as “IT”.

The “key” (and the first step) to finding a cure to “IT” is to find the cause. This can mean

researching the alleged possible cause of “IT”, trying any known treatment protocol for that cause and seeing if symptom resolution is experienced. Remembering, of course, not to undertake any medical treatments without the strict direction of your doctor. I am not sure which possible cause you should start with, my doctor and I ruled out at least 2 causes before finding a treatment protocol that was extremely successful for me.

I suggest you start out by researching all the possible causes of

“IT” and making a determination of which one most likely pertains to you. For example if you live in an area that is known to have ticks, or visited a place known to have ticks around the time your illness began, you would start by researching Lyme Disease and/or Post Lyme Disease. If you live in an estuaries area where the downstream flow of rivers, loaded with agricultural chemicals, meets the incoming tide you would research Possible Estuary Associated Syndrome (PEAS). And if you live, work or

go to school in a “sick building” (a building infected with mold) you would research Sick Building Syndrome.

Through my research and a doctor’s guidance I was able to find the cause of my “IT” and finally follow a treatment protocol that was successful in decreasing all of my (major) symptoms, most of them to a 2 or 3 on a scale from 1- 10 (10 being severe). Although I still cannot go to the gym and work out or participate in sports that require physical activity, I no

longer feel like I have to lift a “Mac Truck” off of myself just to get out of bed in the morning and I have been able to go back to full time work. The bad news is I often get re-infected and have to repeat the treatment. Thankfully research is ongoing and I am confident that in the future a cure for my “IT” will be found.

If you have any questions please contact me personally by emailing me at

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