Category Archives: medical controversies

Why Persister Cells Matter

I get questions about the term “persister” cells as it relates to all the recent Lyme research by top tier Universities.  The obvious question being what is the difference between persister Lyme cells and chronic Lyme cells?  The answer? None … Continue reading

Posted in Chronic Lyme Disease, Coping with Lyme disease, Discussion, Lyme Disease Treatment, medical controversies, Research and Development | Tagged , , , | 1 Comment

Patients Not Addicts – Chronic Lyme Conundrum

Talk to someone suffering with chronic Lyme disease, and chances are, they have been prescribed some form of medication for pain.  More often than not, the medication is opiate based (or synthetic) and marks yet another threshold of humiliation for … Continue reading

Posted in Chronic Lyme Disease, Coping with Lyme disease, Discussion, General, Lyme Stories, medical controversies | Tagged , , , | 1 Comment

Finally New Light On Chronic Lyme Disease

The University of Toronto released a groundbreaking research study yesterday in Cell Reports that finally explains how Borrelia evades antibiotics and causes chronic symptoms. Subscribe to Jenna's Lyme Blog Yes, I want to subscribe. I understand I will only receive … Continue reading

Posted in Chronic Lyme Disease, Discussion, Lyme Disease News, medical controversies, Research and Development | Tagged , , | 4 Comments

Pulsing to Destroy Lyme Persisters

Dr. Allen Steere has to admit to Lyme “persisters”. It must make him furious after almost four decades of denying the existence of chronic Lyme disease. Subscribe to Jenna's Lyme Blog Yes, I want to subscribe. I understand I will … Continue reading

Posted in Chronic Lyme Disease, Discussion, Lyme Disease News, Lyme Disease Symptoms, Lyme Disease Treatment, medical controversies | Tagged , | Leave a comment

Beware of Wild Lyme Strains

It is estimated that there are over 100 strains of Borrelia in the US, and over 200 strains worldwide, but IDSA recommended testing is still based on one lab-identified strain called B-31. This strange and unconscionable state of affairs has … Continue reading

Posted in Chronic Lyme Disease, Diagnosis of Lyme Disease, Lyme Disease News, Lyme Disease Symptoms, medical controversies | Tagged , , , | Leave a comment

The Lyme Wars Continue In Spite of New Studies

I couldn’t help myself. Even though I know how stubborn and self-righteous the naysayers can be, I was pulled into the fray in a recent editorial debate regarding a long article about chronic Lyme disease in Science Based Medicine’s online … Continue reading

Posted in Chronic Lyme Disease, Coping with Lyme disease, Discussion, Lyme Disease Articles, Lyme Disease News, medical controversies | Tagged , , | Leave a comment

Mayday Advocacy Makes Waves

The Mayday Project, a Lyme patient advocacy group, is making waves in DC as it tackles the IDSA/CDC stranglehold on Lyme disease. Subscribe to Jenna's Lyme Blog Yes, I want to subscribe. I understand I will only receive one email each … Continue reading

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Wall Street Journal Tackles Chronic Lyme Disease

Wall Street Journal recently published an article on chronic Lyme disease. That’s right, they actually Subscribe to Jenna's Lyme Blog Yes, I want to subscribe. I understand I will only receive one email each month when there are new posts. … Continue reading

Posted in Chronic Lyme Disease, Lyme Disease Articles, Lyme Disease News, Lyme Disease Symptoms, medical controversies, Research and Development | Tagged , , | 1 Comment

“Persister” Borrelia Bacteria Confirmed by Johns Hopkins

After decades of being treated like “lyme loonies” (who are hypochondriacs, lazy, or insane) we are finally vindicated. In a surprising move Johns Hopkins shocked many in the medical field when doing an end-run around Harvard with a land-mark study … Continue reading

Posted in Chronic Lyme Disease, Diagnosis of Lyme Disease, Lyme Disease News, Lyme Disease Symptoms, Lyme Disease Treatment, medical controversies | Tagged | 6 Comments

Entomological Society of America Releases Urgent Call to Action re: Lyme

Pressure from exacting and reputable researchers (sporting multiple advanced degrees) who are up-to-date with latest research in microbiology and infectious diseases, have finally caused a shift in mainstream research as I have been predicting. Take a look: Subscribe to Jenna's … Continue reading

Posted in Chronic Lyme Disease, Coping with Lyme disease, Diagnosis of Lyme Disease, Discussion, Legislation, Lyme Coinfections, Lyme Disease News, Lyme Disease Symptoms, Lyme Disease Treatment, medical controversies, Neurological Lyme disease, Research and Development | Tagged , , , , , | 6 Comments

Best Test for Diagnosing Lyme

I am so far behind due to my move, but had to share the latest news from a friend who just received a positive Lyme test after the LONG 4 month wait for the Borrelia blood culture (available at Advanced … Continue reading

Posted in Chronic Lyme Disease, Coping with Lyme disease, Diagnosis of Lyme Disease, medical controversies | Tagged , , , , , , | 27 Comments

Must Read: IDSA at it Again!

The Poughkipsee Journal has done a wonderful job of following the plight of those of us with chronic Lyme disease and the irresponsible actions of the CDC and IDSA with their lack of action to change the antiquated 2 tier … Continue reading

Posted in Chronic Lyme Disease, Discussion, Lyme Disease Articles, medical controversies | Tagged , , , | 1 Comment

Add Your Viewpoint About Chronic Lyme Disease

Pamela Weintraub recently spoke out on the medical controversy surrounding chronic Lyme disease and how the people suffering unjustly need to be heard and treated. A website called “Aeon Ideas” published the full article here: http://ideas.aeon.co/viewpoints/1877 and welcomes comments. Subscribe to Jenna's … Continue reading

Posted in Chronic Lyme Disease, Lyme Stories, medical controversies | Tagged , , , , | 4 Comments

Please help Lyme Doctor Yang in San Diego Who is Being Targeted

This letter came to me from a subscriber in San Diego – this is why we need protective legislation for doctors who actually care about getting their patients well: From: Dr. Yang’s Family Care … in the spirit of healing… … Continue reading

Posted in Ask the Doctor, Chronic Lyme Disease, Discussion, General, Lyme Disease Treatment, medical controversies | Tagged , , | 5 Comments

Please Sign Petition to President Regarding Chronic Lyme Disease

The petition is as follows: “Chronic Lyme Disease has reached epidemic proportions. It is the great imitator, fooling doctors into treating patients for other diseases such as Chronic Fatigue, MS, Heart Disease, Rheumatoid Arthritis, Psychiatric Illness, ALS, etc. Yet, according … Continue reading

Posted in Chronic Lyme Disease, General, medical controversies | Tagged , | 8 Comments

People Are Dying From Lyme Who Don’t Know They Have It

Yes, it is true.  Three people between the ages of 26 and 38 died from Lyme induced heart attacks between November 2012 and July of 2013 in New England (NY, CT and MA) who didn’t even know they had Lyme … Continue reading

Posted in Chronic Lyme Disease, Diagnosis of Lyme Disease, Lyme Disease News, Lyme Disease Symptoms, Lyme Stories, medical controversies | Tagged , , , , | 2 Comments

Interviews needed re: Chronic Lyme Disease Experience

I am sharing (with permission) this request I recently received. Hopefully we can help our cause from another angle…objective research. The request came to me as follows: My name is Victor Fontaine and I am a candidate for the Masters … Continue reading

Posted in Discussion, General, Lyme Stories, medical controversies | Tagged , , , | 15 Comments

Governor Cuomo Signs Pro-Lyme Disease Bill Into Law

The State of New York has gotten something right. A new law has been passed in New York protecting Lyme doctors from persecution thanks to the New York State Legislature, strong Lyme activism under Ellen Lubarsky, NY Coalition and Chair … Continue reading

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Studies Show Lyme Disease Persists After Antibiotic Treatment

Yes, that is a picture of Dr. Alan Steere, one of the three doctors at Yale who discovered Lyme back in 1979. So much has happened in the last three decades, but it took less than 10 years for researchers … Continue reading

Posted in Chronic Lyme Disease, Discussion, medical controversies | Tagged , , , , | 1 Comment

The Integrity of Advanced Lab Services

Until early 2012 there was no reliable diagnostic test beyond what is mentioned above. However as of 8/1/2012, a blood culture boasting 99% accuracy (later adjusted to 94% based on comparison testing ) was developed with the assistance of Dr. Burrascano … Continue reading

Posted in Ask the Doctor, Chronic Lyme Disease, Coping with Lyme disease, Diagnosis of Lyme Disease, Discussion, Lyme Disease News, medical controversies | Tagged , , , , | 4 Comments

Has Columbia University’s Lyme Research Center Sold Out to IDSA?

In 2003 the excitement was contagious.  For so many thousands of people suffering with chronic Lyme disease there was finally hope on the horizon. Although the Lyme Research Center would not open until 2007, Columbia University Magazine wrote that year: … Continue reading

Posted in Chronic Lyme Disease, Discussion, General, Lyme Disease News, medical controversies | Tagged , , , , | 2 Comments

RIP Dr. Willy Burgdorfer: Scientific Community in Mourning

The discoverer of the spirochete that causes Lyme disease passed away yesterday, November 17, 2014. In 1982, researcher Willy Burgdorfer, a researcher and expert in spirochetal diseases at Rocky Mountain Laboratories (RML) in Hamilton, Montana, along with his colleague Alan … Continue reading

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Progress with Lyme Disease Medical Debate

At the root of Lyme patients’ struggle for care is a heated debate within the medical community over how best to diagnose Lyme disease, the reliability of laboratory tests and the major difference between the definitions of chronic Lyme disease … Continue reading

Posted in Chronic Lyme Disease, Diagnosis of Lyme Disease, Lyme Disease Symptoms, Lyme Disease Treatment, medical controversies | Tagged , , , , , , , | 1 Comment

Why is Publishing a Number for the Lyme Disease Epidemic Guesswork?

Lately, most people either know someone personally who is suffering with Lyme disease, or they know someone who is close to someone suffering with Lyme disease. Unfortunately, even though the Lyme disease Epidemic (better referred to as Borrelia Epidemic) continues … Continue reading

Posted in Alternative Treatment Protocols, Ask the Doctor, Chronic Lyme Disease, Discussion, Lyme Disease Articles, Lyme Disease Symptoms, medical controversies | Tagged , , , | Leave a comment

The Mystery of Lyme Disease

Four months ago, a 44-year-old woman was referred to me by her audiologist and ENT for acute deafness of the right ear. She is a healthy woman without any past medical history and was not on any medication. Her otolaryngologist … Continue reading

Posted in Ask the Doctor, Chronic Lyme Disease, Diagnosis of Lyme Disease, Lyme Disease News, Lyme Disease Symptoms, Lyme Stories, medical controversies | Tagged , , , | 1 Comment