I am so far behind due to my move, but had to share the latest news from a friend who just received a positive Lyme test after the LONG 4 month wait for the Borrelia blood culture (available at Advanced Lab Services with a 94% accuracy).
I am frustrated that even lymedisease.org ignores this breakthrough diagnostic tool! It was over $900 when I had it done 3 years ago and without it, I would never have been given the treatment that has given me my life back.
It is true that for decades there were no accurate tests for diagnosing Lyme disease, and certainly nothing approaching 94% accuracy! But now THERE IS AN ACCURATE LYME TEST!
The test is under $600, and I recommend that whoever takes it selects the additional 4 month option – especially for chronic cases.
For the science behind the test read: http://www.advanced-lab.com/news/AdvancedLabBooklet.pdf
If you have any experience with this test please add a comment.
The test is discussed in the sequel to “Under Our Skin” and although the state of NY doesn’t recognize the test, it is scientifically sound and there are no problems with contamination as was suggested by the CDC when the test was released a few years back.
Instead we have yet another example of political and financial maneuvering.
Obviously the lab who gets the nod as THE Lyme test will get all the money from hundreds of thousands of tests, and the doctor behind the development of the test gets the royalties.
Advanced Labs has been black-balled due to greedy doctors with no care for the patients who get false negatives on a regular basis and suffer terribly as a result.
Let’s work together to destroy the myth that there is no accurate Lyme test. It was true for a long time but not any more!
FYI, although Dr. Burrascano and Dr. Eva Sapi consulted on the test they do not receive royalties – you can read more about the controversy over this test here: http://lymediseaseresource.com/wordpress/the-integrity-of-advanced-lab-services/