Pamela Weintraub recently spoke out on the medical controversy surrounding chronic Lyme disease and how the people suffering unjustly need to be heard and treated.
A website called “Aeon Ideas” published the full article here: http://ideas.aeon.co/viewpoints/1877 and welcomes comments.
I encourage you to read the whole article and tell your story.
Following is part of her article:
“As long these patients remain so poorly understood, they will continue to be marginalized and the fights between doctors will go on. Only when science can define the engine of their suffering down to very last inflammatory molecule in the human body and the source down to the final genome of each invading pathogen will we truly understand these intersecting illnesses, evolving ever more rapidly with climate change iteself. And only when we vanquish the tragic
medical misstep of defining disease out of existence to stay within the confines of some test, especially tests as flawed as those used for Lyme, will we see each patient through the lens of pathogenesis itself.
Until Lyme science is driven by the most advanced concepts of biomedicine with technologies to match, Lyme patients will suffer. Lyme disease patients treated late in the game will remain contested patients, and they will find themselves someplace they never wanted to be: Navigating the wild west of medicine, filtering out the scams and seeking treatments and hope of the sort you must scavenge and scrounge when the world says you aren’t real.
Is it any surprise that patients like this can frustrate physicians who practice by the book? The tussle between such doctors and counterparts stepping outside the lines to care for contested patients is par for the course.
-Pamela Weintraub, author, Cure Unknown