New Movie on Chronic Lyme Disease

New Movie on Chronic Lyme Disease

Tom Balsamides, an award-winning filmmaker, witnessed the debilitating effects of Lyme disease on his wife Tamara, who struggled for 10 years without a diagnosis and another five until she regained her health and her life. See trailer below… Continue reading

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1st Annual Lyme Disease in the Era of Precision Medicine Conference

1st Annual Lyme Disease in the Era of Precision Medicine Conference

The 1st annual conference “Lyme Disease in the Era of Precision Medicine” was hosted in October 2016 by Mount Sinai’s Institute for Next Generation Healthcare. This unique event sponsored by the Steven & Alexandra Cohen Foundation: Lyme Disease Initiative, focused on opportunities to apply emerging paradigms of precision medicine and network biology to advance understanding and treatment of Lyme disease.

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Another Lyme Species Discovered in Canada

Another Lyme Species Discovered in Canada

Canadians with Lyme disease, like Australians, have been ridiculed for decades over the idea that they could contract Lyme disease in a place that doctors insisted it did not exist. Continue reading

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Johns Hopkins Wins 10M Grant for New Lyme Therapy

Johns Hopkins Wins 10M Grant for New Lyme Therapy

FOR IMMEDIATE RELEASE

Newswise — Johns Hopkins University received a $10 million grant from the Steven and Alexandra Cohen Foundation to explore Lyme disease and develop potential new therapies to address the illness. Johns Hopkins is the only institution in the nation to receive multiple Lyme disease grants from the foundation.

The grant will be divided among three Johns Hopkins research teams led by John Aucott, M.D.; Ying Zhang, M.D., Ph.D.; and Brian Schwartz, M.D.

John Aucott, M.D.
John Aucott, M.D., assistant professor of medicine, and colleague Mark Soloski, Ph.D., professor of medicine, both of the Johns Hopkins University School of Medicine, received a five-year grant for $6 million to support the continuation of the Johns Hopkins Lyme Disease Research Center’s Study of Lyme Disease Immunology and Clinical Events, a longitudinal effort that identifies patients at the onset of Lyme disease, initiates standard treatment and follows them over a one-year period. The aim is to characterize those patients that develop post-treatment Lyme disease syndrome and analyze the immunological pathways triggered as the disease progresses in those patients.

“This grant allows us to expand our research and gain a better understanding of the disease,” Aucott says. “It also allows for greater diversity among participants so we can get more substantive information that can inform future developments in the field of Lyme research and discovery.”

Aucott and Soloski’s work will involve detailed clinical, immunological and molecular profiling, and will be done in collaboration with Joel Dudley, Ph.D., assistant professor of genetics and genomic sciences and director of biomedical informatics at the Icahn School of Medicine at Mount Sinai, in New York City. Dudley will support Aucott and Soloski by developing high-level computer modeling that will aid in the analysis of the large data sets.

With support from the grant, Aucott, director of the Johns Hopkins Lyme Disease Research Center, plans to open a new research site each year of the grant. For year one, he has already begun expanding the Green Spring Station clinical research site in Lutherville, Maryland, nearly doubling the number of exam rooms. Aucott also plans to build a Lyme research clinic at Johns Hopkins Bayview Medical Center. For the second year, he is looking to set up a site in Howard County, Maryland. For year three, he hopes to expand into Pennsylvania. His plans for years four and five will explore sites throughout the East Coast.

“As Lyme cases continue to increase in the U.S., there is an increasing need to understand the disease and its outcomes,” says Aucott. “We have no way of predicting who will recover and who won’t. This grant will allow us to explore why post-treatment Lyme disease syndrome exists, the mechanisms behind the disease and the pathways through which it causes symptoms so that one day, we can use that information to develop ways to prevent the disease or develop more effective drugs. Currently, we don’t have a full understanding of the disease or the most effective ways to treat those it impacts.”

Ying Zhang, M.D., Ph.D.
Ying Zhang, M.D., Ph.D., professor of molecular microbiology and immunology at the Johns Hopkins Bloomberg School of Public Health, received $2.5 million from the foundation for a five-year grant that will allow him and his team to test potential new ways to treat Lyme disease. The grant will support Zhang’s efforts to develop optimal drug combinations to more effectively combat post-treatment Lyme disease syndrome, focusing on developing effective oral drug combination regimens. First, Zhang and his team will develop an oral version of a triple-drug combination that currently is only available through IV. The oral drug combinations will then be tested in vitro (test tube) for effectiveness against Borrelia persisters using novel methodologies recently developed by his group. Next, the drug combinations will be tested in a mouse model of persistent Lyme disease to confirm efficacy, followed by validation in a monkey model, to be performed by his collaborator Monica Embers, Ph.D., from Tulane University.

“This grant is very important for us because it provides stability to the Lyme research program here at Johns Hopkins,” Zhang says. “It will allow us to advance potential new and more effective therapies for this complex and intriguing disease. There is currently no therapy available that effectively treats post-treatment Lyme disease syndrome. “We may be able to fast-track the development of new and better ways to treat the disease.”

Brian Schwartz, M.D.
Brian Schwartz, M.D., professor in the Department of Environmental Health and Engineering at the Johns Hopkins Bloomberg School of Public Health, received more than $1 million from the foundation to conduct a three-year, two-phase investigation of Lyme disease in Pennsylvania, one of the hardest-hit regions for the disease.

In phase I, Schwartz and colleagues will conduct a large-scale, population-based study of the epidemiology of Lyme disease using data from electronic health records from the Geisinger Clinic. These data are available for over 500,000 patients from 2001 to present. Schwartz and colleagues will link that information to community data on land use and land cover — for example, agricultural land, forested land and low-density suburban development. In addition, Schwartz will evaluate populations vulnerable to Lyme disease, delayed diagnosis and treatment by looking at these features by age, sex, race/ethnicity, family socioeconomic status, community socioeconomic status, and a variety of other community and environmental variables.

For phase II, a questionnaire-based study will be performed to assess vulnerabilities within the population. This will include aspects of individual, occupational and community risks, as well as an assessment of people’s knowledge, attitudes and practices regarding Lyme disease diagnosis, treatment and long-term prognosis. Investigators will also analyze who is getting Lyme disease and why, how long it takes until diagnosis, and appropriate treatment. This research will allow for the evaluation of Lyme disease risk, and assess diagnosis and treatment patterns, with a goal of identifying new management strategies to address Lyme disease.

Discovered more than four decades ago, Lyme disease has now spread rapidly throughout the East Coast and Midwest. It is estimated to afflict more than 300,000 people per year, becoming the sixth most common reportable infectious disease in the U.S. However, little is understood about the complex pathogenesis of the disease, which costs the U.S. economy up to $1.3 billion per year in treatment costs alone.

Copied from Newswise press release

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Harvard Doctor Speaks Out About Lyme Disease Misinformation

Harvard Doctor Speaks Out About Lyme Disease Misinformation

Spaulding Hospital, ranked 5th in the country among rehabilitation hospitals by US News & World Report has opened a special center for chronic Lyme disease in Boston Massachusetts, to deal with the Lyme epidemic in the Boston area. Continue reading

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Zika Versus Lyme Disease

Zika Versus Lyme Disease

by Daniel Cameron MD MPH Continue reading

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Patients Not Addicts – Chronic Lyme Conundrum

Patients Not Addicts - Chronic Lyme Conundrum

Talk to someone suffering with chronic Lyme disease, and chances are, they have been prescribed some form of medication for pain.  More often than not, the medication is opiate based (or synthetic) and marks yet another threshold of humiliation for the chronic Lyme sufferer. Continue reading

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Worms Shown to Contribute to Chronic Lyme Disease: MS and Dementia

Worms Shown to Contribute to Chronic Lyme Disease: MS and Dementia

Once again Dr. Alan MacDonald impresses the medical community with his research into Borrelia and the devastating effects on the brain.  The free video presentation on Vimeo follow a lecture presentation by MacDonald in London, May, 2016. Continue reading

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New Study From Netherlands Sheds Light on Chronic Lyme

New Study From Netherlands Sheds Light on Chronic Lyme

People’s immune system react very differently to Lyme disease based on recent research published by Radboud University Medical Center, the University Medical Center Groningen (UMCG), the Broad Institute of MIT and Harvard recently (Oct 2016) in Cell Host & Microbe.

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The Australian Dilemma

The Australian Dilemma

It is terrible to have chronic Lyme disease in the US, or anywhere in the world, but it is disastrous if you live in Australia.  The dilemma: authorities are adamant that there is no Lyme disease in Australia, and claim that any positive blood test is the result of a false positive. However, symptomatic evidence suggest a vast epidemic that baffles experts and puts the sufferers in harms way. Continue reading

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CDC Does It Again!

CDC Does It Again!

Although the study came out last December (2015), the CDC recently made waves by officially supporting the results of the study, conducted by Dr. Wormser and 10 of his closest anti-chronic Lyme cronies. Continue reading

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New Research on Neuro-Inflammation

New Research on Neuro-Inflammation

Anyone with Lyme disease understands that there is neurological involvement with every symptom. Inflamed nerves cause pain whether it is felt from nerves in joints or nerves in the head, it is the inflammation that registers as pain. Continue reading

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Class Action Lawsuit for Lymies in France

Class Action Lawsuit for Lymies in France

Subpoenas have been issued before the high court in Paris, targeting five companies that market the Lyme test, “Elisa” – the only test permitted initially in France to detect Lyme disease. Continue reading

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Do You Have Eye Problems With Chronic Lyme?

Do You Have Eye Problems With Chronic Lyme?

Dr. Daniel Cameron has recently posted  a great article on the possible complications with eye sight on his excellent Lyme blog. Continue reading

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Is Rickettsia Helvetica the Cause of Chronic Lyme Disease?

Is Rickettsia Helvetica the Cause of Chronic Lyme Disease?

STAT News has recently released new information on Lyme disease from an unlikely source – the garage belonging to the late Dr. Willy Burgdorfer. The scientist who discovered Lyme disease back in 1978, Dr. Burgdorfer passed away in 2014 leaving cartons of notes and research after almost a half century of stellar research on tick-born diseases. Continue reading

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New Lyme Law in PA

New Lyme Law in PA

Sadly, so many people with chronic Lyme disease tell horror stories of going to their doctor and being misdiagnosed. By the time Lyme disease is identified it has had a chance to infiltrate the central nervous system as well as delving deep into soft tissue causing endless pain and suffering. Continue reading

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100 Lyme Patients Needed For Study in Adirondacks

100 Lyme Patients Needed For Study in Adirondacks

Adirondack Health is seeking 100 individuals with newly diagnosed, untreated Lyme disease, recurrent Lyme disease (with evidence of a new infection), or suspected Lyme disease for the opportunity to participate in an ongoing research study. Continue reading

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Lyme Disease Vaccine

Lyme Disease Vaccine

Dr. Stanley Plotkin, a prominent virologist and an emeritus professor of pediatrics at the University of Pennsylvaniahas blasted the medical community for its failure to deliver a Lyme vaccine for people. Continue reading

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Harvard Plays Catch Up Re Lyme Treatment

Harvard Plays Catch Up Re Lyme Treatment

Dr. Joseph Burrascano warned 30 years ago about the dangers of using steroids to treat the symptoms of Lyme disease. So it was  hard not to laugh out loud when I came across this most recent Harvard Lyme research. Continue reading

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Finally New Light On Chronic Lyme Disease

Finally New Light On Chronic Lyme Disease

The University of Toronto released a groundbreaking research study yesterday in Cell Reports that finally explains how Borrelia evades antibiotics and causes chronic symptoms. Continue reading

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Alan MacDonald and Tom Grier Publish Research Findings RE Chronic Lyme

Alan MacDonald and Tom Grier Publish Research Findings RE Chronic Lyme

The Paul Duray Research Fellowship Foundation was created in 2014 by Dr. Alan MacDonald to honor hi mentor and friend, Dr. Paul Duray. Last month (July 2016) seven provocative findings were published by associate microbiologist Tom Grier. Continue reading

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Massachusetts Passes New Lyme Law Over Governor’s Veto!

Massachusetts Passes New Lyme Law Over Governor's Veto!

All the grassroots efforts in Massachusetts paid off yesterday when the Senate followed the House to override Governor Charlie Baker’s veto of a hard fought legislative battle to help ease the Lyme crisis. Continue reading

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Game Changer Diagnostic Test From SUNY for Lyme Disease

Game Changer Diagnostic Test From SUNY for Lyme Disease

SUNY has a long history of medical breakthrough’s related to Lyme disease so we shouldn’t be surprised to see Holly Ahern, associate professor of microbiology at SUNY Adirondack and Lyme disease awareness advocate, making a new breakthrough, and this time using DNA testing.

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RNA Nanotechnology For Lyme Disease

RNA Nanotechnology For Lyme Disease

Dr. Jasdave Chahal, a virologist from Massachusetts Institute of Technology, is proposing the use of nonoparticles to immunize people from diseases – including Lyme disease. Continue reading

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Fox News Coverage of Chronic Lyme Disease

Fox News Coverage of Chronic Lyme Disease

Hats off to Fox 5 NY News for their well-researched and interesting presentation this month, “Lyme & Reason”. Continue reading

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